Kudos to PPF!
“Thank you so much for reaching out to me. I left a message on Jacob's site (I have to agree, he is an absolute cutie) hoping that you would. Sometimes I feel like I get more information from other Ewing's parents than the doctors. The first time I had ever even heard about Proton was on your site. I will investigate all the sites you recommended. I just don't know where to start. We live in Delaware”
“I think getting the word out for parents in this area is very important as most doctors here (in Chicago) would not recommend it, and some will actually discourage. I think they are operating on outdated information and will have limited understanding of the benefits of proton. Anyway, please let me know how I can impact your foundation. I constantly put out the word at every chance I get.”
"When M and A first spoke to the standard radiologist
“And to you, Susan and Jim, you have responded to the second phrase. The foundation would never have happened except for Jacob's cancer. This will give you the opportunity to touch the lives of so many youngsters and their families as they are searching for answers they need in their quest for a cure."
"Hello Susan, I am a cancer survivor who elected to have proton therapy. My story is very similar to many of the people who have chosen this option; a by chance discovery of this treatment option and a journey of self education. I was more fortunate than most as I was diagnosed with prostate cancer and there are a number of great resources for men to review. I would like to extend my congratulations on your efforts. Based on my conversations with other families, there is a need to educate and let people know about this option. One can only make informed decisions when all the facts are known. Best wishes, Jeff"
"Susan and Jim, Congratulatios! But, there no worlds to qualify the wonderful job you did. I'm sure it will help many families from now into the future! Unfortunately, the disease puts people in a situation to fight face to face. We are on previous phase working to bring a Treatment Center to Brazil. Your site will encourage and help many people (including ourselves) to understand better Protons. Best regards, Odilon"
Sky & Jacob
Submit your story >