Our Favorite Links
Check These OUT...
National childrens cancer society includes free webinars, newsletter, info on scholarshiPs. Be Sure to check out the free publications. Top notch!
Acor Pediatric Oncology Site - Written by Parents of Cancer Patients - Lots of Great Stuff! A Must Visit.
National Cancer Institute - this is the government arm of the National Institutes of Health. THis site covers Protocols (or treatment plans for each type of cancer), clinical trials, literature and much more.
candlelighters CHildhood cancer foundation - this foundation was started by parents with children with cancer and has a ton of information. This organization understands that cancer is a disease for life. It has many free publications for cancer families. other services include affiliate newsletter, Candlelighters publications, family events, in-hospital parent advocate, support group meetings, new diagnosis comfort kits, emergency financial assistance.
oncolink -- THIS IS ANOTHER TOP NOTCH CANCER SITE AND INCLUDEs ONCOPILOT THAT HELPS ONE NEWLY DIAGNOSED NAVIGATE THE MYRIAD OF CANCER TREATMENT OUT THERE. Downloads for logs that will help keep you organized. They also have oncolife, that helps set-up survivor follow-up plans and So much more.
Curesearch - the National Childhood cancer foundation and the childrens oncology group (cog). Advocacy for a cure for childhood cancer. Funding for research. Most Ped. Oncologist are members of cog.
Proton Bob's Site - the Original Advocate for Prostate Cancer and Proton Treatment. their members are the brotherhood of the red balloon.
The Lance Armstrong Foundation has great info too for all types of cancer and all ages. You can go online and sign-up for a free notebook that will help you track cancer treatment. It is awesome!
Our favorite camp in beautiful Casco, Maine that is free to ALL family members! Children can attend while still in treatment!
Cure Magazine - a free magazine to all subscribers discussing new cancer treatments and research results.
A Charitable Foundation for Kids with HAIR LOSS. In 1992, Hair Club founded a non-profit organization to provide free hair restoration for children battling hair loss as a result of illness. Hair Club understands the importance of self-confidence at an early age. These solutions allow children the confidence to maintain an active and exciting life.
ACOR - offers access to 159 mailing lists that provide support, information and community to everyone affected by cancer and related disorders.
The National Association for Proton Therapy - Lots of Info about each center and insurance info too.
For FINANCIAL ASSISTANCE WITH MEDICAL COPAYS. NONPROFITS.
http://www.cancercopayrelief.org
http://www.cancercare.org/pdf/fact_sheets/fs_financial_en.pdf
Make-a-Wish Foundation - GrantS Wishes to children with life threatening illnesses.
www.makeawish.org
I'm Too Young For This - a cancer site for young adults (15 to 40) fighting cancer or cancer survivors. Pretty cool.
www.imtooyoungforthis.org
People Against Childhood Cancer. Our mission is to raise awareness of childhood cancer. Join the fight at:
http://curechildhoodcancer.ning.com
Caringbridge and Carepages: A place to post updates about your child for your family and friends. It has a place for pictures and a nice guestbook feature for support.
www.caringbridge.org & www.carepages.com
Web based system to organize meals and other help for families during a time of illness or life changing event. Great Way to stay organized and get the help you need from those offering.
www.carecalendar.org
HERE ARE SEVERAL Pediatric Financial Assistance Links WORTH EXPLORING
1.) the Pediatric Oncology Resource Center:
wWw.acor.orwg/ped-onc/cfissues/financehelp/finhelp.html
2.) Children’s Cancer Fund of America
http://www.ccfoa.org
3.) United Health Care Children’s Foundation provides assistance for children with medical costs that are not covered by insurance.
HTTP://www.uhccf.org/apply_applicant.html